Can’t Escape the Urgency

I need to be ready to come out swinging.

First, about Barry. Everyone I talk to is telling me how much more quickly Barry seems to be going downhill. I heard it from Lynn, my friend with a cat. She saw Barry with me at the Biggby’s (a local chain of cafés) a couple weeks ago after not having seen him since probably January. Then there’s Lori from the AA clubhouse, who maybe works there two or three times a year. And then there’s my parents, whom I saw at the family get-together this past week. They could hardly believe how much Barry had gone downhill from last fall (when we actually lived with them for almost a week during plumbing hell) till they got back from Florida in April.

I fight myself on the Barry’s-health issue. I am pretty sure I can see him go downhill a little at a time, but I see him every single day. I am always wondering if I am just imagining things. I need fresh eyes to tell me what they see more objectively.

And I am seeing things now. I am watching the lump on his neck grow. And yesterday, his right ear did not look quite right. First, it looked red, and then slightly blue. I need to observe this more closely. But the goal is never treatment, only pain-relief if it hurts.

I’ve been functioning on the basis that Barry could live another couple of years, spending a final chunk of it in a hospital and/or a nursing home. And now I am not so sure. I also feel like his internal clock is shutting off. For the past few years, he has always awakened at 6am, with his alarm set at 6:45. How he would wake at 5:58 or 5:59 (I would look at my clock when I noticed him get out of bed) was amazing to me. How on earth did he do that? Well, he’s not doing it so much now. The alarm got him out of bed at least once this past week and he’s been getting out of bed later than 6 regularly. So… something is happening.

And then there’s the insurance company vipers. I had a twenty-day elimination period, which ended on May 29th. And they are fighting me on that. They are saying that the Brightstar people had not faxed in the care notes. I do not believe that for one second. So I had them fax them in again. Bottom line: they have yet to reimburse me for one penny of my Brightstar expenses and I cannot continue to afford to pay out-of-pocket forever. I am going to a lawyer for a referral for a “bad faith insurance” attorney.

I cannot work if I cannot get reimbursed for Barry’s care. Period. There is no job I am qualified for right now that will pay me the $20/hour I am paying Brightstar. I’ve gone to great lengths to get qualified to work. What the insurance company has yet to understand is that they messed with the wrong chick. I am not some high-school-dropout, 80-year-old housewife. I am almost 50, with an MBA. Most people are too busy to deal with the insurance company. Not me. I have zero life until they start paying up. I have nothing better to do and all day to do it. I have nothing to lose and absolutely everything to gain by fighting them. I am not wondering if I should contact an attorney. I have actual physical proof they have lied to me in the past. Legally, I have what is called a “slam dunk.” I have documented my phone calls with them. I know when I called, what they said, etc. I have no reason to believe Brightstar is lying to me.

So, Monday or Tuesday, I will call the insurance company to see if they have received the care notes. If not, they are simply making my case. I am going Tuesday to a lawyer that told me that I should contact him for a referral if the insurance company continued acting in bad faith. I’m not doing this just for me. I am advocating for all caregivers that insurance companies are screwing with. I will be able to show others how to beat these vultures at their own game.

I keep having dreams and intuitions that something significant will happen this fall. I do not know what, but this autumn will be huge. I feel a pressing need to prepare now.

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About cdhoagpurple

I have an MBA, am married to a GM/UAW retiree with Huntington's Disease. I am more Buddhist than Christian. I plan on moving to Virginia when widowed. I have a friend''s parents that live down there and another friend living in Maryland. I am simplifying my life in preparation for the eventual move.Eight years ago, my husband had stage 4 cancer. I am truly "neither here nor there." My identity shifts and I am always surprised where I end up. 2015 was my hardest year ever. This is my Dark Night of the Soul. Welcome to it.

2 responses to “Can’t Escape the Urgency”

  1. Ninasusan says :

    What makes me really sad is the mental hell you are going through right now! If everyone would just do their jobs you could put your mental energy to where it should be! On you…on living!

  2. cdhoagpurple says :

    This whole insurance drama simply tells me that the insurance and health care industries need to be non-profit. Now! Any time something is run for profit, profit always, 100% of the time, comes before the needs of real human beings. This is personal. Thanks for your support.

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